Childhood disabilities and the cost of developmental therapies: the service provider perspective

<h3>Purpose</h3><p dir="ltr">For children with neurodevelopmental disabilities (CWNDs), early diagnosis that leads to early intervention with regular targeted therapies is critical. In Qatar, private therapy centres that address this demand often have highly exclusive pri...

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Main Author: Sabika Shaban (18279019) (author)
Other Authors: Hira Amin (6203567) (author)
Published: 2024
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author Sabika Shaban (18279019)
author2 Hira Amin (6203567)
author2_role author
author_facet Sabika Shaban (18279019)
Hira Amin (6203567)
author_role author
dc.creator.none.fl_str_mv Sabika Shaban (18279019)
Hira Amin (6203567)
dc.date.none.fl_str_mv 2024-04-24T09:00:00Z
dc.identifier.none.fl_str_mv 10.1080/17482631.2024.2345816
dc.relation.none.fl_str_mv https://figshare.com/articles/journal_contribution/Childhood_disabilities_and_the_cost_of_developmental_therapies_the_service_provider_perspective/29715161
dc.rights.none.fl_str_mv CC BY 4.0
info:eu-repo/semantics/openAccess
dc.subject.none.fl_str_mv Biomedical and clinical sciences
Neurosciences
Health sciences
Health services and systems
Public health
Children with disabilities
neurodevelopmental disabilities
disability costs
health care providers
disability in Qatar
dc.title.none.fl_str_mv Childhood disabilities and the cost of developmental therapies: the service provider perspective
dc.type.none.fl_str_mv Text
Journal contribution
info:eu-repo/semantics/publishedVersion
text
contribution to journal
description <h3>Purpose</h3><p dir="ltr">For children with neurodevelopmental disabilities (CWNDs), early diagnosis that leads to early intervention with regular targeted therapies is critical. In Qatar, private therapy centres that address this demand often have highly exclusive prices restricting families from availing them. This paper examines the challenges faced by families with CWNDs, as well as various financial and systemic obstacles, from the vantage point of these centres, all of which culminate in an extraordinarily high disability price tag for disability families in Qatar.</p><h3>Methods</h3><p dir="ltr">This study is based on qualitative, semi-structured, and in-depth interviews with private therapy centres and developmental paediatricians.</p><h3>Results</h3><p dir="ltr">Therapy centre representatives expressed common struggles in lengthy and cumbersome administration and licencing procedures, difficulty in hiring and retaining high quality staff, and expenses that need to be paid to the state. From their experience, families largely struggle with delayed diagnoses that significantly slow down intervention plans and therapies as well as staggeringly high financial costs with a dearth of funding options.</p><h3>Conclusions</h3><p dir="ltr">We recommend sincere engagement, dialogue, and cooperation between multiple stakeholders; a supportive ecosystem to balance and distribute the demand that includes schools and parents; as well more efficient administrative procedures and recruitment strategies.</p><h2>Other Information</h2><p dir="ltr">Published in: International Journal of Qualitative Studies on Health and Well-being<br>License: <a href="http://creativecommons.org/licenses/by/4.0/" target="_blank">http://creativecommons.org/licenses/by/4.0/</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1080/17482631.2024.2345816" target="_blank">https://dx.doi.org/10.1080/17482631.2024.2345816</a></p>
eu_rights_str_mv openAccess
id Manara2_13370f9bac44be5ff29371b5afe50296
identifier_str_mv 10.1080/17482631.2024.2345816
network_acronym_str Manara2
network_name_str Manara2
oai_identifier_str oai:figshare.com:article/29715161
publishDate 2024
repository.mail.fl_str_mv
repository.name.fl_str_mv
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rights_invalid_str_mv CC BY 4.0
spelling Childhood disabilities and the cost of developmental therapies: the service provider perspectiveSabika Shaban (18279019)Hira Amin (6203567)Biomedical and clinical sciencesNeurosciencesHealth sciencesHealth services and systemsPublic healthChildren with disabilitiesneurodevelopmental disabilitiesdisability costshealth care providersdisability in Qatar<h3>Purpose</h3><p dir="ltr">For children with neurodevelopmental disabilities (CWNDs), early diagnosis that leads to early intervention with regular targeted therapies is critical. In Qatar, private therapy centres that address this demand often have highly exclusive prices restricting families from availing them. This paper examines the challenges faced by families with CWNDs, as well as various financial and systemic obstacles, from the vantage point of these centres, all of which culminate in an extraordinarily high disability price tag for disability families in Qatar.</p><h3>Methods</h3><p dir="ltr">This study is based on qualitative, semi-structured, and in-depth interviews with private therapy centres and developmental paediatricians.</p><h3>Results</h3><p dir="ltr">Therapy centre representatives expressed common struggles in lengthy and cumbersome administration and licencing procedures, difficulty in hiring and retaining high quality staff, and expenses that need to be paid to the state. From their experience, families largely struggle with delayed diagnoses that significantly slow down intervention plans and therapies as well as staggeringly high financial costs with a dearth of funding options.</p><h3>Conclusions</h3><p dir="ltr">We recommend sincere engagement, dialogue, and cooperation between multiple stakeholders; a supportive ecosystem to balance and distribute the demand that includes schools and parents; as well more efficient administrative procedures and recruitment strategies.</p><h2>Other Information</h2><p dir="ltr">Published in: International Journal of Qualitative Studies on Health and Well-being<br>License: <a href="http://creativecommons.org/licenses/by/4.0/" target="_blank">http://creativecommons.org/licenses/by/4.0/</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1080/17482631.2024.2345816" target="_blank">https://dx.doi.org/10.1080/17482631.2024.2345816</a></p>2024-04-24T09:00:00ZTextJournal contributioninfo:eu-repo/semantics/publishedVersiontextcontribution to journal10.1080/17482631.2024.2345816https://figshare.com/articles/journal_contribution/Childhood_disabilities_and_the_cost_of_developmental_therapies_the_service_provider_perspective/29715161CC BY 4.0info:eu-repo/semantics/openAccessoai:figshare.com:article/297151612024-04-24T09:00:00Z
spellingShingle Childhood disabilities and the cost of developmental therapies: the service provider perspective
Sabika Shaban (18279019)
Biomedical and clinical sciences
Neurosciences
Health sciences
Health services and systems
Public health
Children with disabilities
neurodevelopmental disabilities
disability costs
health care providers
disability in Qatar
status_str publishedVersion
title Childhood disabilities and the cost of developmental therapies: the service provider perspective
title_full Childhood disabilities and the cost of developmental therapies: the service provider perspective
title_fullStr Childhood disabilities and the cost of developmental therapies: the service provider perspective
title_full_unstemmed Childhood disabilities and the cost of developmental therapies: the service provider perspective
title_short Childhood disabilities and the cost of developmental therapies: the service provider perspective
title_sort Childhood disabilities and the cost of developmental therapies: the service provider perspective
topic Biomedical and clinical sciences
Neurosciences
Health sciences
Health services and systems
Public health
Children with disabilities
neurodevelopmental disabilities
disability costs
health care providers
disability in Qatar