Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review

<h3>Background</h3><p dir="ltr">Woodhouse-Sakati syndrome (WSS) is a rare, autosomal recessive genetic disorder with variable clinical manifestations mainly affecting the endocrine and nervous systems. The aim of this study was to systematically review the genetic basis o...

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Main Author: Amira Kohil (15257285) (author)
Other Authors: Atiyeh M. Abdallah (10742523) (author), Khalid Hussain (110443) (author), Mashael Al-Shafai (3466301) (author)
Published: 2023
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author Amira Kohil (15257285)
author2 Atiyeh M. Abdallah (10742523)
Khalid Hussain (110443)
Mashael Al-Shafai (3466301)
author2_role author
author
author
author_facet Amira Kohil (15257285)
Atiyeh M. Abdallah (10742523)
Khalid Hussain (110443)
Mashael Al-Shafai (3466301)
author_role author
dc.creator.none.fl_str_mv Amira Kohil (15257285)
Atiyeh M. Abdallah (10742523)
Khalid Hussain (110443)
Mashael Al-Shafai (3466301)
dc.date.none.fl_str_mv 2023-01-31T03:00:00Z
dc.identifier.none.fl_str_mv 10.1186/s13023-023-02614-8
dc.relation.none.fl_str_mv https://figshare.com/articles/journal_contribution/Genetic_epidemiology_of_Woodhouse-Sakati_Syndrome_in_the_Greater_Middle_East_region_and_beyond_a_systematic_review/25257175
dc.rights.none.fl_str_mv CC BY 4.0
info:eu-repo/semantics/openAccess
dc.subject.none.fl_str_mv Biological sciences
Genetics
Biomedical and clinical sciences
Pharmacology and pharmaceutical sciences
Woodhouse-Sakati
Variants
DCAF17
Arabs
Middle East
Consanguinity
dc.title.none.fl_str_mv Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
dc.type.none.fl_str_mv Text
Journal contribution
info:eu-repo/semantics/publishedVersion
text
contribution to journal
description <h3>Background</h3><p dir="ltr">Woodhouse-Sakati syndrome (WSS) is a rare, autosomal recessive genetic disorder with variable clinical manifestations mainly affecting the endocrine and nervous systems. The aim of this study was to systematically review the genetic basis of WSS and report the genetic variants and clinical phenotypes associated with the disease.</p><h3>Methods</h3><p dir="ltr">PubMed, Science Direct, Scopus, and Web of Science databases were searched from the time of inception until June 2022. Broad search terms were used to capture the literature describing all genetic variants associated with WSS. The search keywords used are “Woodhouse Sakati” along with the term “mutation” OR “gene” OR “variant” OR “polymorphism”.</p><h3>Results</h3><p dir="ltr">Twenty-five eligible studies were included in this study. One hundred and eighty-five patients in 97 families from 12 different countries were diagnosed with WSS. In patients from the Greater Middle East (GME) region, consanguineous marriages were common (67%). Thirteen different DCAF17 variants were associated with WSS development (including 8 identified in the GME region). The most frequent variant was a frameshift deletion variant (c.436delC, p.Ala147Hisfs*9) unique to Arabs that was reported in 11 cases from Tunisia, Kuwait, Qatar, Bahrain, and Saudi Arabia. There were no clear genotype–phenotype correlations for the different variants.</p><h3>Conclusions</h3><p dir="ltr">This systematic review highlights the molecular basis and clinical manifestations of WSS globally, including the GME region, where the disease is prevalent due to consanguinity. Additional studies are now needed to understand the genotype–phenotype correlation for different DCAF17 variants and their impact on the phenotypic heterogeneity observed in WSS patients.</p><h2>Other Information</h2><p dir="ltr">Published in: Orphanet Journal of Rare Diseases<br>License: <a href="https://creativecommons.org/licenses/by/4.0" target="_blank">https://creativecommons.org/licenses/by/4.0</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1186/s13023-023-02614-8" target="_blank">https://dx.doi.org/10.1186/s13023-023-02614-8</a></p>
eu_rights_str_mv openAccess
id Manara2_82546c11255c58b98da5d9ef70c4363c
identifier_str_mv 10.1186/s13023-023-02614-8
network_acronym_str Manara2
network_name_str Manara2
oai_identifier_str oai:figshare.com:article/25257175
publishDate 2023
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rights_invalid_str_mv CC BY 4.0
spelling Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic reviewAmira Kohil (15257285)Atiyeh M. Abdallah (10742523)Khalid Hussain (110443)Mashael Al-Shafai (3466301)Biological sciencesGeneticsBiomedical and clinical sciencesPharmacology and pharmaceutical sciencesWoodhouse-SakatiVariantsDCAF17ArabsMiddle EastConsanguinity<h3>Background</h3><p dir="ltr">Woodhouse-Sakati syndrome (WSS) is a rare, autosomal recessive genetic disorder with variable clinical manifestations mainly affecting the endocrine and nervous systems. The aim of this study was to systematically review the genetic basis of WSS and report the genetic variants and clinical phenotypes associated with the disease.</p><h3>Methods</h3><p dir="ltr">PubMed, Science Direct, Scopus, and Web of Science databases were searched from the time of inception until June 2022. Broad search terms were used to capture the literature describing all genetic variants associated with WSS. The search keywords used are “Woodhouse Sakati” along with the term “mutation” OR “gene” OR “variant” OR “polymorphism”.</p><h3>Results</h3><p dir="ltr">Twenty-five eligible studies were included in this study. One hundred and eighty-five patients in 97 families from 12 different countries were diagnosed with WSS. In patients from the Greater Middle East (GME) region, consanguineous marriages were common (67%). Thirteen different DCAF17 variants were associated with WSS development (including 8 identified in the GME region). The most frequent variant was a frameshift deletion variant (c.436delC, p.Ala147Hisfs*9) unique to Arabs that was reported in 11 cases from Tunisia, Kuwait, Qatar, Bahrain, and Saudi Arabia. There were no clear genotype–phenotype correlations for the different variants.</p><h3>Conclusions</h3><p dir="ltr">This systematic review highlights the molecular basis and clinical manifestations of WSS globally, including the GME region, where the disease is prevalent due to consanguinity. Additional studies are now needed to understand the genotype–phenotype correlation for different DCAF17 variants and their impact on the phenotypic heterogeneity observed in WSS patients.</p><h2>Other Information</h2><p dir="ltr">Published in: Orphanet Journal of Rare Diseases<br>License: <a href="https://creativecommons.org/licenses/by/4.0" target="_blank">https://creativecommons.org/licenses/by/4.0</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1186/s13023-023-02614-8" target="_blank">https://dx.doi.org/10.1186/s13023-023-02614-8</a></p>2023-01-31T03:00:00ZTextJournal contributioninfo:eu-repo/semantics/publishedVersiontextcontribution to journal10.1186/s13023-023-02614-8https://figshare.com/articles/journal_contribution/Genetic_epidemiology_of_Woodhouse-Sakati_Syndrome_in_the_Greater_Middle_East_region_and_beyond_a_systematic_review/25257175CC BY 4.0info:eu-repo/semantics/openAccessoai:figshare.com:article/252571752023-01-31T03:00:00Z
spellingShingle Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
Amira Kohil (15257285)
Biological sciences
Genetics
Biomedical and clinical sciences
Pharmacology and pharmaceutical sciences
Woodhouse-Sakati
Variants
DCAF17
Arabs
Middle East
Consanguinity
status_str publishedVersion
title Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
title_full Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
title_fullStr Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
title_full_unstemmed Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
title_short Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
title_sort Genetic epidemiology of Woodhouse-Sakati Syndrome in the Greater Middle East region and beyond: a systematic review
topic Biological sciences
Genetics
Biomedical and clinical sciences
Pharmacology and pharmaceutical sciences
Woodhouse-Sakati
Variants
DCAF17
Arabs
Middle East
Consanguinity