Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar
<p dir="ltr">In 2013 both Saudi Arabia and Qatar launched genome projects with the aim of providing information for better diagnosis, treatment and prevention of diseases and, ultimately to realize personalized medicine by sequencing hundred thousands samples. These population based...
محفوظ في:
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| مؤلفون آخرون: | , , , |
| منشور في: |
2015
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إضافة وسم
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| _version_ | 1864513557178089472 |
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| author | Hatem El Shanti (19687144) |
| author2 | Lotfi Chouchane (61840) Ramin Badii (491543) Imed Eddine Gallouzi (14908101) Paolo Gasparini (139832) |
| author2_role | author author author author |
| author_facet | Hatem El Shanti (19687144) Lotfi Chouchane (61840) Ramin Badii (491543) Imed Eddine Gallouzi (14908101) Paolo Gasparini (139832) |
| author_role | author |
| dc.creator.none.fl_str_mv | Hatem El Shanti (19687144) Lotfi Chouchane (61840) Ramin Badii (491543) Imed Eddine Gallouzi (14908101) Paolo Gasparini (139832) |
| dc.date.none.fl_str_mv | 2015-11-14T09:00:00Z |
| dc.identifier.none.fl_str_mv | 10.1186/s12967-015-0720-9 |
| dc.relation.none.fl_str_mv | https://figshare.com/articles/journal_contribution/Genetic_testing_and_genomic_analysis_a_debate_on_ethical_social_and_legal_issues_in_the_Arab_world_with_a_focus_on_Qatar/27045286 |
| dc.rights.none.fl_str_mv | CC BY 4.0 info:eu-repo/semantics/openAccess |
| dc.subject.none.fl_str_mv | Biological sciences Genetics Biomedical and clinical sciences Clinical sciences Genomic analysis Genetic testing Consanguinity Islamic view Genome projects |
| dc.title.none.fl_str_mv | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar |
| dc.type.none.fl_str_mv | Text Journal contribution info:eu-repo/semantics/publishedVersion text contribution to journal |
| description | <p dir="ltr">In 2013 both Saudi Arabia and Qatar launched genome projects with the aim of providing information for better diagnosis, treatment and prevention of diseases and, ultimately to realize personalized medicine by sequencing hundred thousands samples. These population based genome activities raise a series of relevant ethical, legal and social issues general, related to the specific population structure as well as to the Islamic perspective on genomic analysis and genetic testing. To contribute to the debate, the Authors after reviewing the existing literature and taking advantage of their professional experience in the field and in the geographic area, discuss and provide their opinions. In particular, the Authors focus on the impact of consanguinity on population structure and disease frequency in the Arab world, on genetic testing and genomic analysis (i.e. technical aspects, impact, etc.) and on their regulations. A comparison between the Islamic perspective and the ethical, social and legal issues raised in other population contexts is also carried. In conclusion, this opinion article with an up-to-date contribution to the discussion on the relevance and impact of genomic analysis and genetic testing in the Arab world, might help in producing specific national guidelines on genetic testing and genomic analysis and help accelerate the implementation and roll out of genome projects in Muslim countries and more specifically in Qatar, and other countries of the Gulf.</p><h2>Other Information</h2><p dir="ltr">Published in: Journal of Translational Medicine<br>License: <a href="https://creativecommons.org/licenses/by/4.0/deed.en" target="_blank">https://creativecommons.org/licenses/by/4.0/</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1186/s12967-015-0720-9" target="_blank">https://dx.doi.org/10.1186/s12967-015-0720-9</a></p> |
| eu_rights_str_mv | openAccess |
| id | Manara2_9407698b2b1a69a904f67c8c8ce72e5e |
| identifier_str_mv | 10.1186/s12967-015-0720-9 |
| network_acronym_str | Manara2 |
| network_name_str | Manara2 |
| oai_identifier_str | oai:figshare.com:article/27045286 |
| publishDate | 2015 |
| repository.mail.fl_str_mv | |
| repository.name.fl_str_mv | |
| repository_id_str | |
| rights_invalid_str_mv | CC BY 4.0 |
| spelling | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on QatarHatem El Shanti (19687144)Lotfi Chouchane (61840)Ramin Badii (491543)Imed Eddine Gallouzi (14908101)Paolo Gasparini (139832)Biological sciencesGeneticsBiomedical and clinical sciencesClinical sciencesGenomic analysisGenetic testingConsanguinityIslamic viewGenome projects<p dir="ltr">In 2013 both Saudi Arabia and Qatar launched genome projects with the aim of providing information for better diagnosis, treatment and prevention of diseases and, ultimately to realize personalized medicine by sequencing hundred thousands samples. These population based genome activities raise a series of relevant ethical, legal and social issues general, related to the specific population structure as well as to the Islamic perspective on genomic analysis and genetic testing. To contribute to the debate, the Authors after reviewing the existing literature and taking advantage of their professional experience in the field and in the geographic area, discuss and provide their opinions. In particular, the Authors focus on the impact of consanguinity on population structure and disease frequency in the Arab world, on genetic testing and genomic analysis (i.e. technical aspects, impact, etc.) and on their regulations. A comparison between the Islamic perspective and the ethical, social and legal issues raised in other population contexts is also carried. In conclusion, this opinion article with an up-to-date contribution to the discussion on the relevance and impact of genomic analysis and genetic testing in the Arab world, might help in producing specific national guidelines on genetic testing and genomic analysis and help accelerate the implementation and roll out of genome projects in Muslim countries and more specifically in Qatar, and other countries of the Gulf.</p><h2>Other Information</h2><p dir="ltr">Published in: Journal of Translational Medicine<br>License: <a href="https://creativecommons.org/licenses/by/4.0/deed.en" target="_blank">https://creativecommons.org/licenses/by/4.0/</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1186/s12967-015-0720-9" target="_blank">https://dx.doi.org/10.1186/s12967-015-0720-9</a></p>2015-11-14T09:00:00ZTextJournal contributioninfo:eu-repo/semantics/publishedVersiontextcontribution to journal10.1186/s12967-015-0720-9https://figshare.com/articles/journal_contribution/Genetic_testing_and_genomic_analysis_a_debate_on_ethical_social_and_legal_issues_in_the_Arab_world_with_a_focus_on_Qatar/27045286CC BY 4.0info:eu-repo/semantics/openAccessoai:figshare.com:article/270452862015-11-14T09:00:00Z |
| spellingShingle | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar Hatem El Shanti (19687144) Biological sciences Genetics Biomedical and clinical sciences Clinical sciences Genomic analysis Genetic testing Consanguinity Islamic view Genome projects |
| status_str | publishedVersion |
| title | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar |
| title_full | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar |
| title_fullStr | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar |
| title_full_unstemmed | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar |
| title_short | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar |
| title_sort | Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar |
| topic | Biological sciences Genetics Biomedical and clinical sciences Clinical sciences Genomic analysis Genetic testing Consanguinity Islamic view Genome projects |