Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes

<p dir="ltr">Cascade genetic testing is the process of extending genetic testing to at-risk blood relatives of individuals (called “probands”) found to carry cancer predisposition germline pathogenic gene variants. Cascade testing is critical as relatives found to carry a pathogenic...

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Main Author: Muhammad Danyal Ahsan (14488278) (author)
Other Authors: Emily M. Webster (15153079) (author), Natalie T. Nguyen (14522624) (author), Murtaza Qazi (14115377) (author), Sarah R. Levi (8445507) (author), Lisa C. Diamond (17727666) (author), Ravi N. Sharaf (14488284) (author), Melissa K. Frey (15153085) (author)
Published: 2023
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author Muhammad Danyal Ahsan (14488278)
author2 Emily M. Webster (15153079)
Natalie T. Nguyen (14522624)
Murtaza Qazi (14115377)
Sarah R. Levi (8445507)
Lisa C. Diamond (17727666)
Ravi N. Sharaf (14488284)
Melissa K. Frey (15153085)
author2_role author
author
author
author
author
author
author
author_facet Muhammad Danyal Ahsan (14488278)
Emily M. Webster (15153079)
Natalie T. Nguyen (14522624)
Murtaza Qazi (14115377)
Sarah R. Levi (8445507)
Lisa C. Diamond (17727666)
Ravi N. Sharaf (14488284)
Melissa K. Frey (15153085)
author_role author
dc.creator.none.fl_str_mv Muhammad Danyal Ahsan (14488278)
Emily M. Webster (15153079)
Natalie T. Nguyen (14522624)
Murtaza Qazi (14115377)
Sarah R. Levi (8445507)
Lisa C. Diamond (17727666)
Ravi N. Sharaf (14488284)
Melissa K. Frey (15153085)
dc.date.none.fl_str_mv 2023-04-28T03:00:00Z
dc.identifier.none.fl_str_mv 10.1038/s41431-023-01364-2
dc.relation.none.fl_str_mv https://figshare.com/articles/journal_contribution/Underrepresentation_of_racial_and_ethnic_minorities_in_cascade_testing_for_hereditary_cancer_syndromes/24935973
dc.rights.none.fl_str_mv CC BY 4.0
info:eu-repo/semantics/openAccess
dc.subject.none.fl_str_mv Biological sciences
Genetics
hereditary cancer syndromes
cascade genetic testing
probands
dc.title.none.fl_str_mv Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
dc.type.none.fl_str_mv Text
Journal contribution
info:eu-repo/semantics/publishedVersion
text
contribution to journal
description <p dir="ltr">Cascade genetic testing is the process of extending genetic testing to at-risk blood relatives of individuals (called “probands”) found to carry cancer predisposition germline pathogenic gene variants. Cascade testing is critical as relatives found to carry a pathogenic gene variant have the opportunity to pursue targeted cancer risk reduction and early detection, decreasing cancer-associated morbidity and mortality. The Centers for Disease Control and Prevention Office of Public Health Genomics has designated cascade genetic testing as a tier one genomic application for Hereditary Breast and Ovarian Cancer and Lynch syndrome. Mathematical modeling suggests that the combination of germline genetic testing at time of cancer diagnosis with subsequent cascade testing of at-risk relatives has the potential to identify all individuals with a cancer predisposing pathogenic variant in the United States in less than a decade. However, our recent systematic review published in the Journal of Clinical Oncology demonstrates that only about a third of at-risk relatives undergo recommended cascade testing.</p><p dir="ltr"><br></p><h2>Other Information</h2><p dir="ltr">Published in: European Journal of Human Genetics<br>License: <a href="https://creativecommons.org/licenses/by/4.0" target="_blank">https://creativecommons.org/licenses/by/4.0</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1038/s41431-023-01364-2" target="_blank">https://dx.doi.org/10.1038/s41431-023-01364-2</a></p>
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identifier_str_mv 10.1038/s41431-023-01364-2
network_acronym_str Manara2
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oai_identifier_str oai:figshare.com:article/24935973
publishDate 2023
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rights_invalid_str_mv CC BY 4.0
spelling Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromesMuhammad Danyal Ahsan (14488278)Emily M. Webster (15153079)Natalie T. Nguyen (14522624)Murtaza Qazi (14115377)Sarah R. Levi (8445507)Lisa C. Diamond (17727666)Ravi N. Sharaf (14488284)Melissa K. Frey (15153085)Biological sciencesGeneticshereditary cancer syndromescascade genetic testingprobands<p dir="ltr">Cascade genetic testing is the process of extending genetic testing to at-risk blood relatives of individuals (called “probands”) found to carry cancer predisposition germline pathogenic gene variants. Cascade testing is critical as relatives found to carry a pathogenic gene variant have the opportunity to pursue targeted cancer risk reduction and early detection, decreasing cancer-associated morbidity and mortality. The Centers for Disease Control and Prevention Office of Public Health Genomics has designated cascade genetic testing as a tier one genomic application for Hereditary Breast and Ovarian Cancer and Lynch syndrome. Mathematical modeling suggests that the combination of germline genetic testing at time of cancer diagnosis with subsequent cascade testing of at-risk relatives has the potential to identify all individuals with a cancer predisposing pathogenic variant in the United States in less than a decade. However, our recent systematic review published in the Journal of Clinical Oncology demonstrates that only about a third of at-risk relatives undergo recommended cascade testing.</p><p dir="ltr"><br></p><h2>Other Information</h2><p dir="ltr">Published in: European Journal of Human Genetics<br>License: <a href="https://creativecommons.org/licenses/by/4.0" target="_blank">https://creativecommons.org/licenses/by/4.0</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.1038/s41431-023-01364-2" target="_blank">https://dx.doi.org/10.1038/s41431-023-01364-2</a></p>2023-04-28T03:00:00ZTextJournal contributioninfo:eu-repo/semantics/publishedVersiontextcontribution to journal10.1038/s41431-023-01364-2https://figshare.com/articles/journal_contribution/Underrepresentation_of_racial_and_ethnic_minorities_in_cascade_testing_for_hereditary_cancer_syndromes/24935973CC BY 4.0info:eu-repo/semantics/openAccessoai:figshare.com:article/249359732023-04-28T03:00:00Z
spellingShingle Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
Muhammad Danyal Ahsan (14488278)
Biological sciences
Genetics
hereditary cancer syndromes
cascade genetic testing
probands
status_str publishedVersion
title Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
title_full Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
title_fullStr Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
title_full_unstemmed Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
title_short Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
title_sort Underrepresentation of racial and ethnic minorities in cascade testing for hereditary cancer syndromes
topic Biological sciences
Genetics
hereditary cancer syndromes
cascade genetic testing
probands