A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes

<p dir="ltr">Clefts of the lip and/or palate (CL/P) are considered the most common form of congenital anomalies occurring either in isolation or in association with other clinical features. Van der woude syndrome (VWS) is associated with about 2% of all CL/P cases and is further char...

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المؤلف الرئيسي: Alya A. Al-Kurbi (18324927) (author)
مؤلفون آخرون: Elbay Aliyev (14056972) (author), Sana AlSa’afin (19420597) (author), Waleed Aamer (14056969) (author), Sasirekha Palaniswamy (14152563) (author), Aljazi Al-Maraghi (14056975) (author), Houda Kilani (18543973) (author), Ammira Al-Shabeeb Akil (15143925) (author), Mitchell A. Stotland (15220174) (author), Khalid A. Fakhro (3158862) (author)
منشور في: 2023
الموضوعات:
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author Alya A. Al-Kurbi (18324927)
author2 Elbay Aliyev (14056972)
Sana AlSa’afin (19420597)
Waleed Aamer (14056969)
Sasirekha Palaniswamy (14152563)
Aljazi Al-Maraghi (14056975)
Houda Kilani (18543973)
Ammira Al-Shabeeb Akil (15143925)
Mitchell A. Stotland (15220174)
Khalid A. Fakhro (3158862)
author2_role author
author
author
author
author
author
author
author
author
author_facet Alya A. Al-Kurbi (18324927)
Elbay Aliyev (14056972)
Sana AlSa’afin (19420597)
Waleed Aamer (14056969)
Sasirekha Palaniswamy (14152563)
Aljazi Al-Maraghi (14056975)
Houda Kilani (18543973)
Ammira Al-Shabeeb Akil (15143925)
Mitchell A. Stotland (15220174)
Khalid A. Fakhro (3158862)
author_role author
dc.creator.none.fl_str_mv Alya A. Al-Kurbi (18324927)
Elbay Aliyev (14056972)
Sana AlSa’afin (19420597)
Waleed Aamer (14056969)
Sasirekha Palaniswamy (14152563)
Aljazi Al-Maraghi (14056975)
Houda Kilani (18543973)
Ammira Al-Shabeeb Akil (15143925)
Mitchell A. Stotland (15220174)
Khalid A. Fakhro (3158862)
dc.date.none.fl_str_mv 2023-03-31T09:00:00Z
dc.identifier.none.fl_str_mv 10.3390/genes14040849
dc.relation.none.fl_str_mv https://figshare.com/articles/journal_contribution/A_Complex_Intrachromosomal_Rearrangement_Disrupting_i_IRF6_i_in_a_Family_with_Popliteal_Pterygium_and_Van_der_Woude_Syndromes/26661631
dc.rights.none.fl_str_mv CC BY 4.0
info:eu-repo/semantics/openAccess
dc.subject.none.fl_str_mv Biological sciences
Genetics
Biomedical and clinical sciences
Clinical sciences
popliteal pterygium syndrome
1q32
IRF6 gene
Cleft palate
cleft lip
syndactyly
intrachromosomal rearrangements
whole-genome sequencing
dc.title.none.fl_str_mv A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
dc.type.none.fl_str_mv Text
Journal contribution
info:eu-repo/semantics/publishedVersion
text
contribution to journal
description <p dir="ltr">Clefts of the lip and/or palate (CL/P) are considered the most common form of congenital anomalies occurring either in isolation or in association with other clinical features. Van der woude syndrome (VWS) is associated with about 2% of all CL/P cases and is further characterized by having lower lip pits. Popliteal pterygium syndrome (PPS) is a more severe form of VWS, normally characterized by orofacial clefts, lower lip pits, skin webbing, skeletal anomalies and syndactyly of toes and fingers. Both syndromes are inherited in an autosomal dominant manner, usually caused by heterozygous mutations in the Interferon Regulatory Factor 6 (<i>IRF6</i>) gene. Here we report the case of a two-generation family where the index presented with popliteal pterygium syndrome while both the father and sister had clinical features of van der woude syndrome, but without any point mutations detected by re-sequencing of known gene panels or microarray testing. Using whole genome sequencing (WGS) followed by local de novo assembly, we discover and validate a copy-neutral, 429 kb complex intra-chromosomal rearrangement in the long arm of chromosome 1, disrupting the <i>IRF6</i> gene. This variant is copy-neutral, novel against publicly available databases, and segregates in the family in an autosomal dominant pattern. This finding suggests that missing heritability in rare diseases may be due to complex genomic rearrangements that can be resolved by WGS and de novo assembly, helping deliver answers to patients where no genetic etiology was identified by other means.</p><h2>Other Information</h2><p dir="ltr">Published in: Genes<br>License: <a href="https://creativecommons.org/licenses/by/4.0/" target="_blank">https://creativecommons.org/licenses/by/4.0/</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.3390/genes14040849" target="_blank">https://dx.doi.org/10.3390/genes14040849</a></p>
eu_rights_str_mv openAccess
id Manara2_e1087e1cd52a1b09347c61184e778721
identifier_str_mv 10.3390/genes14040849
network_acronym_str Manara2
network_name_str Manara2
oai_identifier_str oai:figshare.com:article/26661631
publishDate 2023
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spelling A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude SyndromesAlya A. Al-Kurbi (18324927)Elbay Aliyev (14056972)Sana AlSa’afin (19420597)Waleed Aamer (14056969)Sasirekha Palaniswamy (14152563)Aljazi Al-Maraghi (14056975)Houda Kilani (18543973)Ammira Al-Shabeeb Akil (15143925)Mitchell A. Stotland (15220174)Khalid A. Fakhro (3158862)Biological sciencesGeneticsBiomedical and clinical sciencesClinical sciencespopliteal pterygium syndrome1q32IRF6 geneCleft palatecleft lipsyndactylyintrachromosomal rearrangementswhole-genome sequencing<p dir="ltr">Clefts of the lip and/or palate (CL/P) are considered the most common form of congenital anomalies occurring either in isolation or in association with other clinical features. Van der woude syndrome (VWS) is associated with about 2% of all CL/P cases and is further characterized by having lower lip pits. Popliteal pterygium syndrome (PPS) is a more severe form of VWS, normally characterized by orofacial clefts, lower lip pits, skin webbing, skeletal anomalies and syndactyly of toes and fingers. Both syndromes are inherited in an autosomal dominant manner, usually caused by heterozygous mutations in the Interferon Regulatory Factor 6 (<i>IRF6</i>) gene. Here we report the case of a two-generation family where the index presented with popliteal pterygium syndrome while both the father and sister had clinical features of van der woude syndrome, but without any point mutations detected by re-sequencing of known gene panels or microarray testing. Using whole genome sequencing (WGS) followed by local de novo assembly, we discover and validate a copy-neutral, 429 kb complex intra-chromosomal rearrangement in the long arm of chromosome 1, disrupting the <i>IRF6</i> gene. This variant is copy-neutral, novel against publicly available databases, and segregates in the family in an autosomal dominant pattern. This finding suggests that missing heritability in rare diseases may be due to complex genomic rearrangements that can be resolved by WGS and de novo assembly, helping deliver answers to patients where no genetic etiology was identified by other means.</p><h2>Other Information</h2><p dir="ltr">Published in: Genes<br>License: <a href="https://creativecommons.org/licenses/by/4.0/" target="_blank">https://creativecommons.org/licenses/by/4.0/</a><br>See article on publisher's website: <a href="https://dx.doi.org/10.3390/genes14040849" target="_blank">https://dx.doi.org/10.3390/genes14040849</a></p>2023-03-31T09:00:00ZTextJournal contributioninfo:eu-repo/semantics/publishedVersiontextcontribution to journal10.3390/genes14040849https://figshare.com/articles/journal_contribution/A_Complex_Intrachromosomal_Rearrangement_Disrupting_i_IRF6_i_in_a_Family_with_Popliteal_Pterygium_and_Van_der_Woude_Syndromes/26661631CC BY 4.0info:eu-repo/semantics/openAccessoai:figshare.com:article/266616312023-03-31T09:00:00Z
spellingShingle A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
Alya A. Al-Kurbi (18324927)
Biological sciences
Genetics
Biomedical and clinical sciences
Clinical sciences
popliteal pterygium syndrome
1q32
IRF6 gene
Cleft palate
cleft lip
syndactyly
intrachromosomal rearrangements
whole-genome sequencing
status_str publishedVersion
title A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
title_full A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
title_fullStr A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
title_full_unstemmed A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
title_short A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
title_sort A Complex Intrachromosomal Rearrangement Disrupting <i>IRF6 </i>in a Family with Popliteal Pterygium and Van der Woude Syndromes
topic Biological sciences
Genetics
Biomedical and clinical sciences
Clinical sciences
popliteal pterygium syndrome
1q32
IRF6 gene
Cleft palate
cleft lip
syndactyly
intrachromosomal rearrangements
whole-genome sequencing