Stigma tool cross-cultural adaptation framework.
<div><p>Stigma is common in people affected with Neglected Tropical Diseases (NTDs). However, no validated tools are available to assess and monitor stigma in trachoma-affected communities. We tested the cross-cultural equivalence of the 5-question stigma indicator-affected persons (5-QS...
محفوظ في:
| المؤلف الرئيسي: | |
|---|---|
| مؤلفون آخرون: | , , , , , , , , , , , , , , |
| منشور في: |
2024
|
| الموضوعات: | |
| الوسوم: |
إضافة وسم
لا توجد وسوم, كن أول من يضع وسما على هذه التسجيلة!
|
| _version_ | 1852024860671213568 |
|---|---|
| author | Misrak Negash (18256504) |
| author2 | Zerihun Tadesse (325347) Fentie Ambaw (4171402) Michael Beka (20348020) Tilahun Belete (14185583) Melkamu Abte (20348023) Kebede Deribe (95495) Julian Eaton (258072) Eve Byrd (20348026) E. Kelly Callahan (4109578) David Addiss (689453) Wim H. van Brakel (8072069) Abebaw Fekadu (291703) David Macleod (2557612) Matthew Burton (3404375) Esmael Habtamu (139116) |
| author2_role | author author author author author author author author author author author author author author author |
| author_facet | Misrak Negash (18256504) Zerihun Tadesse (325347) Fentie Ambaw (4171402) Michael Beka (20348020) Tilahun Belete (14185583) Melkamu Abte (20348023) Kebede Deribe (95495) Julian Eaton (258072) Eve Byrd (20348026) E. Kelly Callahan (4109578) David Addiss (689453) Wim H. van Brakel (8072069) Abebaw Fekadu (291703) David Macleod (2557612) Matthew Burton (3404375) Esmael Habtamu (139116) |
| author_role | author |
| dc.creator.none.fl_str_mv | Misrak Negash (18256504) Zerihun Tadesse (325347) Fentie Ambaw (4171402) Michael Beka (20348020) Tilahun Belete (14185583) Melkamu Abte (20348023) Kebede Deribe (95495) Julian Eaton (258072) Eve Byrd (20348026) E. Kelly Callahan (4109578) David Addiss (689453) Wim H. van Brakel (8072069) Abebaw Fekadu (291703) David Macleod (2557612) Matthew Burton (3404375) Esmael Habtamu (139116) |
| dc.date.none.fl_str_mv | 2024-11-27T18:40:07Z |
| dc.identifier.none.fl_str_mv | 10.1371/journal.pmen.0000191.g001 |
| dc.relation.none.fl_str_mv | https://figshare.com/articles/figure/Stigma_tool_cross-cultural_adaptation_framework_/27921677 |
| dc.rights.none.fl_str_mv | CC BY 4.0 info:eu-repo/semantics/openAccess |
| dc.subject.none.fl_str_mv | Sociology Science Policy Biological Sciences not elsewhere classified retest reliability analysis repeat measures produced problems getting married neglected tropical diseases exploratory qualitative methods central corneal opacity 19 mental health xlink "> stigma question stigma indicators question stigma indicator mean stigma scores speaking study population cronbach &# 8217 390 people participated monitor stigma associated person without tt intraclass correlation coefficient satisfactory cultural validity social distance scale ethiopia </ p monitor stigma explore stigma community stigma study community social science people affected &# 945 convergent validity construct validity cultural validation cultural equivalence cultural adaptation validated tools tt faced tt ), trachomatous trichiasis target culture systematic bias rapidly measure operational equivalence ntds ). measurement equivalence linguistics experts items included internal consistency eight interviewers blinding stage amhara region affected communities affected amharic adequately relevant |
| dc.title.none.fl_str_mv | Stigma tool cross-cultural adaptation framework. |
| dc.type.none.fl_str_mv | Image Figure info:eu-repo/semantics/publishedVersion image |
| description | <div><p>Stigma is common in people affected with Neglected Tropical Diseases (NTDs). However, no validated tools are available to assess and monitor stigma in trachoma-affected communities. We tested the cross-cultural equivalence of the 5-question stigma indicator-affected persons (5-QSI-AP) scale in persons with trachomatous trichiasis (TT), the blinding stage of trachoma, and the 5-question stigma indicator-community stigma (5-QSI-CS) scale in person without TT, in Amhara region, Ethiopia. Conceptual, item, semantic, and operational equivalence were assessed through exploratory qualitative methods; measurement equivalence was assessed quantitatively through internal consistency, construct validity, and reproducibility. A total of 390 people participated: 181 were persons with TT, 182 persons without TT, 19 mental health, trachoma, social science, and linguistics experts, and eight interviewers. Items included in both scales were adequately relevant and important to explore stigma in the target culture. Concern about others knowing that they have TT, shame, avoidance by others, and problems getting married or in their marriage were among the issues persons with TT faced in this study community. The 5-QSI-AP had a Cronbach’s α of 0.57 for internal consistency and showed adequate discriminant validity where persons with central corneal opacity from TT had higher mean stigma scores than their counterparts. The 5-QSI-CS had a Cronbach’s α of 0.70 for internal consistency and a correlation of r = 0.23 with the Social Distance Scale (SDS) for convergent validity. The test-retest reliability analysis between the initial and repeat measures produced an intraclass correlation coefficient of 0.60 and 0.53 for the 5-QSI-AP and 5-QSI-CS respectively, and no evidence of systematic bias in mean stigma scores. The 5-QSI scales have satisfactory cultural validity to assess and monitor stigma in this trachoma-affected Amharic-speaking study population. With further cross-cultural validation, these brief and easy to administer scales would offer the possibility to rapidly measure and monitor stigma associated with NTDs.</p></div> |
| eu_rights_str_mv | openAccess |
| id | Manara_2a14cc4e1abd64e4c76afc28e7355372 |
| identifier_str_mv | 10.1371/journal.pmen.0000191.g001 |
| network_acronym_str | Manara |
| network_name_str | ManaraRepo |
| oai_identifier_str | oai:figshare.com:article/27921677 |
| publishDate | 2024 |
| repository.mail.fl_str_mv | |
| repository.name.fl_str_mv | |
| repository_id_str | |
| rights_invalid_str_mv | CC BY 4.0 |
| spelling | Stigma tool cross-cultural adaptation framework.Misrak Negash (18256504)Zerihun Tadesse (325347)Fentie Ambaw (4171402)Michael Beka (20348020)Tilahun Belete (14185583)Melkamu Abte (20348023)Kebede Deribe (95495)Julian Eaton (258072)Eve Byrd (20348026)E. Kelly Callahan (4109578)David Addiss (689453)Wim H. van Brakel (8072069)Abebaw Fekadu (291703)David Macleod (2557612)Matthew Burton (3404375)Esmael Habtamu (139116)SociologyScience PolicyBiological Sciences not elsewhere classifiedretest reliability analysisrepeat measures producedproblems getting marriedneglected tropical diseasesexploratory qualitative methodscentral corneal opacity19 mental healthxlink "> stigmaquestion stigma indicatorsquestion stigma indicatormean stigma scoresspeaking study populationcronbach &# 8217390 people participatedmonitor stigma associatedperson without ttintraclass correlation coefficientsatisfactory cultural validitysocial distance scaleethiopia </ pmonitor stigmaexplore stigmacommunity stigmastudy communitysocial sciencepeople affected&# 945convergent validityconstruct validitycultural validationcultural equivalencecultural adaptationvalidated toolstt facedtt ),trachomatous trichiasistarget culturesystematic biasrapidly measureoperational equivalencentds ).measurement equivalencelinguistics expertsitems includedinternal consistencyeight interviewersblinding stageamhara regionaffected communitiesaffected amharicadequately relevant<div><p>Stigma is common in people affected with Neglected Tropical Diseases (NTDs). However, no validated tools are available to assess and monitor stigma in trachoma-affected communities. We tested the cross-cultural equivalence of the 5-question stigma indicator-affected persons (5-QSI-AP) scale in persons with trachomatous trichiasis (TT), the blinding stage of trachoma, and the 5-question stigma indicator-community stigma (5-QSI-CS) scale in person without TT, in Amhara region, Ethiopia. Conceptual, item, semantic, and operational equivalence were assessed through exploratory qualitative methods; measurement equivalence was assessed quantitatively through internal consistency, construct validity, and reproducibility. A total of 390 people participated: 181 were persons with TT, 182 persons without TT, 19 mental health, trachoma, social science, and linguistics experts, and eight interviewers. Items included in both scales were adequately relevant and important to explore stigma in the target culture. Concern about others knowing that they have TT, shame, avoidance by others, and problems getting married or in their marriage were among the issues persons with TT faced in this study community. The 5-QSI-AP had a Cronbach’s α of 0.57 for internal consistency and showed adequate discriminant validity where persons with central corneal opacity from TT had higher mean stigma scores than their counterparts. The 5-QSI-CS had a Cronbach’s α of 0.70 for internal consistency and a correlation of r = 0.23 with the Social Distance Scale (SDS) for convergent validity. The test-retest reliability analysis between the initial and repeat measures produced an intraclass correlation coefficient of 0.60 and 0.53 for the 5-QSI-AP and 5-QSI-CS respectively, and no evidence of systematic bias in mean stigma scores. The 5-QSI scales have satisfactory cultural validity to assess and monitor stigma in this trachoma-affected Amharic-speaking study population. With further cross-cultural validation, these brief and easy to administer scales would offer the possibility to rapidly measure and monitor stigma associated with NTDs.</p></div>2024-11-27T18:40:07ZImageFigureinfo:eu-repo/semantics/publishedVersionimage10.1371/journal.pmen.0000191.g001https://figshare.com/articles/figure/Stigma_tool_cross-cultural_adaptation_framework_/27921677CC BY 4.0info:eu-repo/semantics/openAccessoai:figshare.com:article/279216772024-11-27T18:40:07Z |
| spellingShingle | Stigma tool cross-cultural adaptation framework. Misrak Negash (18256504) Sociology Science Policy Biological Sciences not elsewhere classified retest reliability analysis repeat measures produced problems getting married neglected tropical diseases exploratory qualitative methods central corneal opacity 19 mental health xlink "> stigma question stigma indicators question stigma indicator mean stigma scores speaking study population cronbach &# 8217 390 people participated monitor stigma associated person without tt intraclass correlation coefficient satisfactory cultural validity social distance scale ethiopia </ p monitor stigma explore stigma community stigma study community social science people affected &# 945 convergent validity construct validity cultural validation cultural equivalence cultural adaptation validated tools tt faced tt ), trachomatous trichiasis target culture systematic bias rapidly measure operational equivalence ntds ). measurement equivalence linguistics experts items included internal consistency eight interviewers blinding stage amhara region affected communities affected amharic adequately relevant |
| status_str | publishedVersion |
| title | Stigma tool cross-cultural adaptation framework. |
| title_full | Stigma tool cross-cultural adaptation framework. |
| title_fullStr | Stigma tool cross-cultural adaptation framework. |
| title_full_unstemmed | Stigma tool cross-cultural adaptation framework. |
| title_short | Stigma tool cross-cultural adaptation framework. |
| title_sort | Stigma tool cross-cultural adaptation framework. |
| topic | Sociology Science Policy Biological Sciences not elsewhere classified retest reliability analysis repeat measures produced problems getting married neglected tropical diseases exploratory qualitative methods central corneal opacity 19 mental health xlink "> stigma question stigma indicators question stigma indicator mean stigma scores speaking study population cronbach &# 8217 390 people participated monitor stigma associated person without tt intraclass correlation coefficient satisfactory cultural validity social distance scale ethiopia </ p monitor stigma explore stigma community stigma study community social science people affected &# 945 convergent validity construct validity cultural validation cultural equivalence cultural adaptation validated tools tt faced tt ), trachomatous trichiasis target culture systematic bias rapidly measure operational equivalence ntds ). measurement equivalence linguistics experts items included internal consistency eight interviewers blinding stage amhara region affected communities affected amharic adequately relevant |