<b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b>
<p dir="ltr">Many critically unwell patients who are faced with the decision of whether or not to accept intensive care treatment have no previous experiences of what it is like to be an intensive care patient. The experiences of previous intensive care patients are, therefore, a val...
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2025
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| _version_ | 1849927644866412544 |
|---|---|
| author | Thomas Donaldson (22653461) |
| author_facet | Thomas Donaldson (22653461) |
| author_role | author |
| dc.creator.none.fl_str_mv | Thomas Donaldson (22653461) |
| dc.date.none.fl_str_mv | 2025-11-24T12:30:01Z |
| dc.identifier.none.fl_str_mv | 10.48420/30666095.v1 |
| dc.relation.none.fl_str_mv | https://figshare.com/articles/dataset/_b_Intensive_care_decision-making_survival_and_dying_well_b_b_How_do_the_experiences_of_intensive_care_patients_and_their_end-of-life_wishes_affect_their_willingness_to_accept_intensive_care_treatment_at_different_chances_of_survival_b_/30666095 |
| dc.rights.none.fl_str_mv | CC BY 4.0 info:eu-repo/semantics/openAccess |
| dc.subject.none.fl_str_mv | Intensive care Intensive Care Survival Dying Well Decision-making Patient experience |
| dc.title.none.fl_str_mv | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> |
| dc.type.none.fl_str_mv | Dataset info:eu-repo/semantics/publishedVersion dataset |
| description | <p dir="ltr">Many critically unwell patients who are faced with the decision of whether or not to accept intensive care treatment have no previous experiences of what it is like to be an intensive care patient. The experiences of previous intensive care patients are, therefore, a valuable source on information for patients facing this important life or death decision. This study investigated how the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival.</p><p dir="ltr">This is a mixed method study (utilising qualitative and quantitative methods), based on a pragmatic approach focussing on the best methodological approach to answering my research questions, rather than based on a commitment to any particular metaphysical concern or paradigm. A purposeful sample of patients was recruited through ICU recovery clinics and ICU steps groups. </p><p dir="ltr">The mixed methods approach involves triangulation of: </p><p dir="ltr">· Thematic analysis of semi-structured interviews. </p><p dir="ltr">· Quantification of patient’s ICU experiences through the ICU Memory Tool, their functional status before and after their critical illness through the EQ-5D-5L tool, their preferences for end of life using the Concept of a Good Death Measure, and whether their ICU experience would have been a good death using the QODD questionnaire. </p><p dir="ltr">· Integration of quantitative and qualitative data by asking “what chance of survival would make you willing to go through that experience again?” </p><p dir="ltr">The use of quantitative data allows for a “thick description” to support the transferability of the findings of this study and analytic generalisations resulting from it.</p><p dir="ltr"><br></p><p dir="ltr">Research Questions</p><p dir="ltr">What can ICU survivors’ experiences of ICU treatment tell us about what it would be like to die whilst receiving ICU treatment?</p><p dir="ltr">How do ICU survivors’ reflections about what it might be like to die on ICU relate to their own preferences for their end-of-life care?</p><p dir="ltr">What chance of survival would make ICU survivors willing to go through ICU treatment again, in light of the fact that the alternative chance is dying whilst experiencing ICU treatment?</p><p dir="ltr">How does the possibility of reduction in health-related quality of life and functional decline as a result of critical illness impact ICU survivors’ willingness to accept ICU treatment again?</p> |
| eu_rights_str_mv | openAccess |
| id | Manara_e9854a6b1e9c88075c09f5b65a808150 |
| identifier_str_mv | 10.48420/30666095.v1 |
| network_acronym_str | Manara |
| network_name_str | ManaraRepo |
| oai_identifier_str | oai:figshare.com:article/30666095 |
| publishDate | 2025 |
| repository.mail.fl_str_mv | |
| repository.name.fl_str_mv | |
| repository_id_str | |
| rights_invalid_str_mv | CC BY 4.0 |
| spelling | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b>Thomas Donaldson (22653461)Intensive careIntensive CareSurvivalDying WellDecision-makingPatient experience<p dir="ltr">Many critically unwell patients who are faced with the decision of whether or not to accept intensive care treatment have no previous experiences of what it is like to be an intensive care patient. The experiences of previous intensive care patients are, therefore, a valuable source on information for patients facing this important life or death decision. This study investigated how the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival.</p><p dir="ltr">This is a mixed method study (utilising qualitative and quantitative methods), based on a pragmatic approach focussing on the best methodological approach to answering my research questions, rather than based on a commitment to any particular metaphysical concern or paradigm. A purposeful sample of patients was recruited through ICU recovery clinics and ICU steps groups. </p><p dir="ltr">The mixed methods approach involves triangulation of: </p><p dir="ltr">· Thematic analysis of semi-structured interviews. </p><p dir="ltr">· Quantification of patient’s ICU experiences through the ICU Memory Tool, their functional status before and after their critical illness through the EQ-5D-5L tool, their preferences for end of life using the Concept of a Good Death Measure, and whether their ICU experience would have been a good death using the QODD questionnaire. </p><p dir="ltr">· Integration of quantitative and qualitative data by asking “what chance of survival would make you willing to go through that experience again?” </p><p dir="ltr">The use of quantitative data allows for a “thick description” to support the transferability of the findings of this study and analytic generalisations resulting from it.</p><p dir="ltr"><br></p><p dir="ltr">Research Questions</p><p dir="ltr">What can ICU survivors’ experiences of ICU treatment tell us about what it would be like to die whilst receiving ICU treatment?</p><p dir="ltr">How do ICU survivors’ reflections about what it might be like to die on ICU relate to their own preferences for their end-of-life care?</p><p dir="ltr">What chance of survival would make ICU survivors willing to go through ICU treatment again, in light of the fact that the alternative chance is dying whilst experiencing ICU treatment?</p><p dir="ltr">How does the possibility of reduction in health-related quality of life and functional decline as a result of critical illness impact ICU survivors’ willingness to accept ICU treatment again?</p>2025-11-24T12:30:01ZDatasetinfo:eu-repo/semantics/publishedVersiondataset10.48420/30666095.v1https://figshare.com/articles/dataset/_b_Intensive_care_decision-making_survival_and_dying_well_b_b_How_do_the_experiences_of_intensive_care_patients_and_their_end-of-life_wishes_affect_their_willingness_to_accept_intensive_care_treatment_at_different_chances_of_survival_b_/30666095CC BY 4.0info:eu-repo/semantics/openAccessoai:figshare.com:article/306660952025-11-24T12:30:01Z |
| spellingShingle | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> Thomas Donaldson (22653461) Intensive care Intensive Care Survival Dying Well Decision-making Patient experience |
| status_str | publishedVersion |
| title | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> |
| title_full | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> |
| title_fullStr | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> |
| title_full_unstemmed | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> |
| title_short | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> |
| title_sort | <b>Intensive care decision-making, survival and dying well:</b><b>How do the experiences of intensive care patients and their end-of-life wishes affect their willingness to accept intensive care treatment at different chances of survival?</b> |
| topic | Intensive care Intensive Care Survival Dying Well Decision-making Patient experience |